SDIG
Other Voluntary Organisations

 

      

 


ACE
AIDS
Alcohol
Alzheimers
Ankylosing Spondylitis
Arthritis
Asthma
Autism
Bells Palsy
Befriending Schemes
Bereavement
Breathe Easy
Bone
Cancer
Child Care Information Service
Cruse
Cystic Fibrosis
Developmental
Diabetes
Disabled Parents
Down's Syndrome
Drugs
Dyslexia
Epilepsy
Fibromyalgia Syndrome
Head Injuries
Heart Related
Huntingdons Disease
Kidney Patients
Leukaemia


Limbless Disabled
Lung Conditions
Lupus
ME
MIND
Motor Neurone
Multiple Sclerosis
Muscular Dystrophy
Osteoporosis
Parkinson's
Polio
Psoriasis
RADAR
Rape Crisis
Raynaulds & Scleroderma
Scope
Sense
SOLD (Special Objectives for Local Disabled)
Spina Bifida & Hydrocephalus
Spinal Injuries
SSAFA
St John Ambulance
Street Forge Worshops
Stroke
Suffolk East Federation of WIs
Suffolk Progression Centre
Suffolk Respite Care Association
TOGETHER Working for Wellbeing
Women's Health


  

ACE
Supports self-advocacy in Suffolk for people who use learning disability service.  Tel: Saxmundham 01449 678088 or Tel: Saxmundham 01728 604399.  E-mail: acepeoplefirst@bt.connect.com

AIDS

  • Fightback Trust Supporting HIV positive people & raising awareness in the community on a county-wide basis.
  • Mon-Fri: 11am-3pm, closed Thurs.. Michael Williams, 7 Beach Road, Lowestoft, NR32 1EA. Tel: 01502 531300 Fax: 01502 538911
    Website: www.fightbacktrust.org.uk  E-mail: fightbacktrust@tiscali.co.uk
  • Ipswich & Suffolk AIDS Helpline
    Tel: 01473 232007
  • National AIDS Trust
    Tel: 020 7814 6767
  • Terrence Higgins Lighthouse Trust
    Helpline: 0845 122 1200 Website: www.tht.org.uk
  • West Suffolk AIDS Line
    Tel: 01284 775280 Email: wsaidsline@lhp.nhs.uk
    Advice line for people with AIDS/HIV, where people can get help, especially testing.
  • Service covers Bury St Edmunds, Newmarket, Sudbury, Lavenham, Lakenheath, Mildenhall & Haverhill.

ALCOHOL

  • Al Anon Family Group
    Provides help to those affected by someone else's drinking. Telephone for details of local branches.
    Tel: 0207 403 0888 (10am – 10.00pm helpline).
  • Alcoholics Anonymous
    PO Box 1, Stonebow House, York, YO1 7NJ. NATIONAL HELPLINE: 0845 769 7555
  • Norcas
    For advice and counselling regarding substance misuse.
    Ipswich - The Lower Brook Street Centre, 41 Lower Brook St, Ipswich, IP4 1AQ.
    Tel: 01473 259382 Fax: 01473 289471 Email: ipswich@norcas.org.uk
    Lowestoft - 10-12 Regent Road, Lowestoft, NR32 1PA.
    Tel: 01502 513444. Email: lowestoft@norcas.org.uk
  • Suffolk Drugs & Alcohol Helpline See entry under Drugs

ALZHEIMER'S SOCIETY

National Contact Details:

Gordon House, 10 Greencoat Place, London, SW1P 1PH
Helpline: 0845 300 0336 - Fax: 020 7306 0808. Mon-Fri 8.30am-6.30pm
Website: www.alzheimers.org.uk  E-mail: info@alzheimers.org.uk

Regional groups:

  • West Suffolk 01284 766433 (Mondays and Thursdays)
  • East Suffolk Mon-Fri: 10 – 3pm. Tel: 01473 211050
  • Lowestoft Tel: 01502 51471

ANKYLOSING SPONDYLITIS
National Ankylosing Spondylitis Society. Tel: 020 8948 9117, Fax: 020 8940 7736 E-mail: nass@nass.co.uk

ARTHRITIS CARE
18 Stephenson Way, NW1 2HD. Helpline Tel: 0808 800 4050
E-mail: info@arthritiscare.org.uk Website: www.arthritiscare.org.uk
Regional Office for Central England (including Suffolk) Tel: 0115 952 5522
Branches in Felixstowe, Ipswich and Newmarket

ARTHRITIS RESEARCH CAMPAIGN
Copeman House, St Mary's Court, Chesterfield, S41 7TD. Tel: 0870 850 5000 Fax: 01246 558007
E-mail: info@arc.org.uk Website: www.arc.org.uk

ASSOCIATION FOR SPINA BIFIDA AND HYDROCEPHALUS (ASBAH)
Helpline Tel: 0845 450 7755
42 Park Road, PE1 2UQ. Tel: 01733 555988 Fax: 01733 555985
E-mail: info@asbah.org.uk Website: info@asbah.org.uk

ASTHMA
See Lung Conditions

AUTISM
See Autism Suffolk

BEFRIENDING SCHEMES

  • Age Concern Befriending Network Tel: 01473 288047
  • Newmarket Befriending Scheme Tel: 01638 608048
  • Mildenhall Tel: 01638 716910

BELLS PALSY HELPLINE
Great Yarmouth & Waveney. Tel: 01502 563256
Website: www.bellspalsy.org.uk

BONE

National Osteoporosis Society
Camerton, BA2 0PJ. Helpline Tel: 0845 4500 230
E-mail: nurses@nos.org.uk Website: www.nos.org.uk
Suffolk Support Group Jean Nunn . E-mail: jean.nunn@ukonline.co.uk Website: www.nos-suffolk.org.uk

Brittle Bone Society
30 Guthrie Street, Dundee, DD1 5BS. Helpline Tel: 08000 282459
E-mail: bbs@brittlebone.org Website: www.brittlebone.org

CANCER

Breast Cancer Care
61-63 St John St, EC1M 4AN. Tel: 0808 800 6000
Website: www.breastcancercare.org.uk

Ellie Savage Memorial Trust
Raises money to support research into brain tumours & to help relieve the suffering in children living with cancer. Wendy Savage. Tel: 01502 539509
E-mail: use website contact page Website: www.ellietrust.org

CHILD CARE INFORMATION SERVICE
Tel: 0845 608 0033

CRUSE
Bereavement care and counselling. Day by day helpline Tel: 0844 477 9400 Administration Tel: 020 8939 9530.
E-mail: helpline@cruse.org.uk Website: www.crusebereavementcare.org.uk

  • West Suffolk Tel: 01284 767674
  • Ipswich & Suffolk Coastal Tel: 01473 230888
  • North Suffolk & Great Yarmouth Tel: 01502 722234

CYSTIC FIBROSIS
Support helpline: 0845 859 1000
Website: www.cftrust.org.uk

DEVELOPMENTAL

Mencap
Help & advice to people with learning difficulties & their families. There are local branches throughout Suffolk. Tel: 020 7454 0454
Bury St Edmunds Tel: 01284 753526
Ipswich Tel: 01473 437241
Lowestoft & Waveney Tel: 01502 580886
Woodbridge & District Tel: 01473 622443

DIABETES UK
10 Parkway, London, NW1 7AA. Tel: 0845 120 2960
E-mail: info@diabetes.org.uk Website: www.diabetes.org.uk
Eastern Region Tel No: 01376 501390

DISABLED PARENTS NETWORK
A support network providing support on pregnancy & parenthood for disabled people. Tel: 0870 241 0450
E-mail: information@disabledparentsnetwork.org.uk Website: www.disabledparentsnetwork.org.uk

DOWN'S SYNDROME
Local Opportunities & Awareness of Down's Syndrome (LOADS)
A support group for people who have Down's Syndrome, their families & carers. The organisation covers the whole of East Anglia. Tel: 01473 430434
E-mail: loadsadmin@googlemail.com Website: www.loads.org.uk

DRUGS

  • Community Drugs Team
    For advice & counselling. 37 Berners Street, Ipswich, IP1 3LN. Tel: 01473 236069

  • Norcas
    See entry under Alcohol

  • Suffolk Drugs & Alcohol Helpline
    Provides confidential, anonymous advice, information & support about drugs and alcohol misuse to family members, partners, friends, work colleagues or young people who do not know who to turn to. (answerphone at other times). Tel: 0808 800 1122

  • West Suffolk Drugs Service
    Advice & information on drug & alcohol issues. Open Mon-Fri: 9am-5pm (closed Thurs am). 2nd Floor, Bloomfield House Health Centre Bury St Edmunds IP33 1HE. Tel: 01284 775275

DYSLEXIA

EPILEPSY

  • Epilepsy Action
    Head Office, New Anstey House, Gate Way Drive, Leeds, LS19 7XY. Tel: 0808 800 5050
    Email: helpline@epilepsy.org.uk
    Ipswich (24 hour helpline) Tel: 01473 461407 Waveney Pat Savage. Tel: 01603 783547

  • National Society for Epilepsy
    Chesham Lane, Chalfont St Peter, Buckinghamshire, SL9 0RJ.
    Tel: 01494 601400. Website: www.epilepsynse.org.uk

FAMILY WELFARE ASSOCIATION
Help for families and people with mental health needs
Tel: 020 7254 6251 Fax: 020 7249 5443
Email: fwa.headoffice@fwa.org.uk Website: www.fwa.org.uk

FIBROMYALGIA SYNDROME SUPPORT GROUP
Meets the second Wednesday of each month at NHS Allington House, 427 Woodbridge Road, Ipswich, IP4 4ER.. Lynn Crisp . Tel: 0871 7503845 Email: sampetcar1@ntlworld.com

GOOD NEIGHBOUR GARDENING SCHEME
Gill Robinson, c/o Volunteer Centre, 1 Kingston Villa, Sun Lane, Newmarket, CB8 8EW. Tel: 01638 608048. Provides help with gardening for disabled people at a reasonable cost.

HEAD INJURIES

  • Headway
    Day care for people suffering a traumatic head injury. Website: www.fwa.org.uk
    Norfolk & Waveney Headway House, Trafalgar Road East, Great Yarmouth, NR31 6NX. Tel: 01493 442994
    Ipswich & East Suffolk Headway House, Ipswich Hospital, Ipswich, IP4 5PD.
    Tel: 01473 704159
    West Suffolk c/o West End Road Home Guard Social Club, 53 Abbot Road Bury St Edmunds, IP33 3UB. Tel: 01284 702535
  • Icanho
    Provides a specialist day rehabilitation service for people between the ages of 18 and 65 with a head injury or stroke. Rehabilitation programmes are designed to meet individual needs.. Suffolk Brain Injury Rehabilitation Centre, Chilton Way, Stowmarket, IP14 1SZ. Tel: 01449 774161
  • Optua UK
    Provides support to adults with acquired brain injury living in the community. A specialist service meeting the needs of people with complex needs. Optua House, Hill View Business Park, Claydon, Suffolk, IP6 0AJ.
    Email: enquiries@optua.org.uk Website: www.optua.org.uk

HEART RELATED

  • British Heart Foundation,
    14 Fitzhardinge Street, W1H 6DH.
    Information Line : 08450 70 80 70 Fax: 0207 486 5820
    Web: www.bhf.org.uk

  • British Cardiac Patients Association (Zipper Club) 
    National Helpline Tel: 01223 846845
    Email: HelpMe@BCPA.co.uk Website: www.bcpa.co.uk

    East Suffolk Anita Postle Tel: 01787 370850

    West Suffolk Brian Hartington Tel: 01284 762783

  • Heartbeat East Suffolk
    Tel: 01473 686371

  • Heartcare Cardiac Support Group (Lowestoft & Waveney)
    Jill Griggs (Membership Secretary) Tel: 01502 569512
    Email: jillie@talktalk.net

HUNTINGDONS DISEASE ASSOCIATION
Down Stream Building, 1 London Bridge, London, SE1 9BG Tel: 0207 022 1950 Fax: 0207 022 1953
Email: info@hda.org.uk Website: www.hda.org.uk

KIDNEY PATIENT ASSOCIATION (BRITISH)
For people with kidney problems, particularly those on dialysis.
Bordon, GU35 9JZ. Tel: 01420 472021. Website: www.britishkidney-pa.co.uk

LEUKAEMIA CARE SOCIETY
24 hour care line. Tel: 0800 169 6680
Email: enquiries@leukaemiaCARE.org.uk Website: www.leukaemiacare.org.uk

LIMBLESS DISABLED

  • British Limbless Ex-Servicemans Association (BLESMA)
    HQ Tel: 0208 590 1124 Website: www.blesma.org
  • Limbless Association
    Queen Mary's Hospital, Roehampton Lane, SW15 5PR. Tel: 0208 788 1777
    Website: www.limbless-association.org

LUNG CONDITIONS

  • Asthma UK
    Summit House, 70 Wilson Street, London, EC2A 2DB. Tel: 0845 701 0203
    Website: www.asthma.org.uk

  • Breathe Easy (Great Yarmouth & Waveney)
    Support group for people with lung conditions. Regular meetings are held on the last Wednesday of each month at 2.15pm at Hopton Village Hall, Station Road, Hopton. Tel: 01493 730258
    See also Website: www.lunguk.org

LUPUS UK
St James House, Eastern Road, Romford, Essex, RM1 3NH. Tel: 01708 731251
Email: headoffice@lupusuk.org.uk Website: www.lupusuk.com


ME (Myalgic Encephalomyelitis)

  • Action for ME
    Third Floor_Canningford House_38 Victoria Street_Bristol_BS1 6BY
    Tel: 0845 123 2380
    Email: admin@afme.org.uk Website: www.afme.org.uk
  • Beccles & District ME/CFS Support Group
    Contact Brian Hindle. Tel: 01986 893676.
    Website: www.becclestown.co.uk/beccles-me-support
  • Framlingham & District ME Support Group
    Aims to support & give information for people suffering from ME & their carers. Services include newsletters, transport to meetings, book library, etc. Mrs A Rose, 62 Kings Avenue, Framlingham, IP13 9HD.
  • ME Association
    4 Top Angel, Buckingham Industrial Park, MK18 1TH. Helpline: 0870 444 1835
    Email: meconnect@meassociation.org.uk Website: www.meassociation.org.uk

 

MIND
Support, information & advice on mental health issues.. 15-19 Broadway, E15 4QB. Tel: 0845 766 0163 Website: www.mind.org.uk

East Suffolk Tel: 01473 231666
Email: info@eastsuffolkmind.org.uk Website: www.eastsuffolkmind.org.uk

Great Yarmonth & Waveney Tel: 01493 842129 Email: penny@gymind.org

West Suffolk Tel: 01284 764808 Email: sue@westsuffolkmind.org.uk

MOTOR NEURONE DISEASE ASSOCIATION
PO Box 246 NN1 2PR. Helpline: 08457 626262
Email: mndconnect@mdnassociation.org Website: www.mndassociation.org

MULTIPLE SCLEROSIS SOCIETY
MS National Centre, 372 Edgware Road, NW2 6ND. Tel: 0808 800 8000
Website: www.mssociety.org.uk
Regional contacts:

  • Bury St Edmunds & District Tel: 01284 723 110
  • Newmarket & District Tel: 01638 731488
  • North Suffolk & District Tel: 01493 393999
  • South Suffolk Tel: 01473 828731

MUSCULAR DYSTROPHY CAMPAIGN
7-11 Prescott Place, SW4 6BS. Tel: 0207 220 8055 Fax: 0207 498 0670
Email: info@muscular-dystrophy.org Website: www.muscular-dystrophy.org

Regional contact Anne Jackson, Tel: 01787 313 913 Email: anglia@muscular-dystrophy.org

NATIONAL OSTEOPOROSIS SOCIETY
See entry under BONE

PARKINSON'S DISEASE SOCIETY 
215 Vauxhall Bridge Road, London, SW1V 1EJ. Helpline: 0808 800 0303
Email: enquiries@parkinsons.org.uk Website: www.parkinsons.org.uk

  • Bury St Edmunds Helen Stiff . Tel: 01359 241611
  • Felixstowe Patrick Paris Tel: 01394 671479
  • Ipswich & East Suffolk Diana Talbot . Tel: 01473 711606
  • Great Yarmouth & Waveney Mrs Pauline Euinton . Tel: 01493 445314
  • Newmarket Barry Salter Tel: 01638 605658
  • Sudbury Valentine Hurrell Tel: 01787 247121

  • YAPPRS (Young Alert Parkinson's Partners & Relatives)
    Website: yap-web.net

POLIO FELLOWSHIP (BRITISH )
Eagle Office Centre, The Runway, HA4 6SE. Tel: 0800 018 0586
Email: info@britishpolio.org.uk Website: www.britishpolio.org.uk

PSORIASIS ASSOCIATION
Milton House, 7 Milton Street, NN2 7JG. Tel: 0845 676 0076
Email: mail@psoriasis.demon.co.uk Website: www.psoriasis-association.org.uk

RADAR (ROYAL ASSOCIATION FOR DISABILITY & REHABILITATION)
12 City Forum, 250 City Road, London, EC1V 8AF
Tel: 020 7250 3222. Minicom: 020 7250 4119. Email: radar@radar.org.uk
Website: www.radar.org.uk

RAPE CRISIS (Suffolk)
Tel: 01473 715333

RAYNAUDS & SCLERODERMA ASSOCIATION
112 Crewe Road, Alsager, ST7 2JA. Tel: 01270 872776
Email: info@raynaulds.org.uk Website: www.raynauds.org.uk

  • Stowmarket Mrs C Buckledee. Tel: 01449 740851

SCOPE
Cerebral Palsy Helpline Mon-Fri: 9am-9pm & Sat-Sun: 2-6pm.. PO Box 833, MK12 5NY Tel: 0808 800 3333
E-mail: response@scope.org.uk Website: www.scope.org.uk/helpline

  • Central & East of England Office, Suite 1 - Ground Floor, Winston House
    Monckton Road, Wakefield. WF2 7AX. Tel: 01924 366711

SENSE
Help & advice for people with sight & hearing problems and their families & carers.
11-13 Clifton Terrace, Finsbury Park, N4 3SR. Tel: 0845 127 0060 Fax: 0845 127 0061 Text: 0845 127 0062 Website: www.sense.org.uk E-mail: info@sense.org.uk

SOLD (Special Objectives For The Local Disabled)
A charitable organisation set up to give people with severe disabilities an opportunity to develop exisiting skills & to learn new ones.. 36 Harvest Drive, South Lowestoft Industrial Estate, Lowestoft, NR33 7NJ. Tel: 01502 512617

SPINAL INJURIES ASSOCIATION (SIA)
SIA House, 2 Trueman Place, Milton Keynes, MK6 2HH. Helpline Tel: 0800 980 0501
Open 9.30am-4.30pm (closed 1-2pm) Mon to Fri.
Email: sia@spinal.co.uk Website: www.spinal.co.uk

SSAFA (SOLDIERS, SAILORS, AIR FORCE ASSOCIATION)
19 Queen Elizabeth Street, SE1 2LP. Tel: 0845 1300 975
Email: info@ssafa.org.uk Website: www.ssafa.org.uk

ST JOHN AMBULANCE
For first aid, transport & health advice. Priory House, Duckamere, Ipswich, IP8 4AJ.
Tel: 01473 241500 Website: www.sja.org.uk

  • Beccles Tel: 01502 719673
  • Lowestoft Tel: 01502 569658

STREET FORGE WORKSHOPS
Opportunities to develop employment skills. Tel: 01379 678543

STROKE ASSOCIATION - Dysphasia Support
National Stroke Helpline 240 City Road, EC1V 2PR. Tel: 0845 303 3100
Email: info@stroke.org.uk Website: www.stroke.org.uk

  • Regional Centre for East Anglia. Lark House, 117 Eastgate Street, Bury St Edmunds, IP33 1YQ. Tel: 01284 760006.

SUFFOLK EAST FEDERATION OF WOMEN'S INSTITUTES
Aims to educate & inform women in a wide range of topics & make improvements to the community.
22 Orford Street, Ipswich, IP1 3NS. Tel: 01473 251632
Email: office@sefwi.org.uk Website: www.sefwi.org.uk

SUFFOLK PROGRESSION CENTRE (PAPWORTH TRUST)
Offers disabled adults a chance to gain confidence & develop social & work skills, with different programmes to match their goals, abilities & interests.
40-42 Museum Street, Ipswich, IP1 1JQ. Tel: 01473 232146
Email: info@papworth.org.uk Website: info@papworth.org.uk

SUFFOLK RESPITE CARE ASSOCIATION
Offers free support and practical help in the form of regular respite breaks, to carers of people who suffer from ongoing, serious mental health problems.
3 Constable Court, The Street, Belstead, Ipswich, Suffolk, IP8 3LY.
Tel/Fax: 01473 730929 Email: sr@btconnect.com

TOGETHER WORKING FOR WELLBEING - SUFFOLK COMMUNITY SUPPORT
TOGETHER is a leading national charity working for wellbeing: that means we support people with mental health needs to get what they want from life and to feel happier. We do this by running a range of services across the country; by campaigning and doing research; and by educating local communities about their own mental health needs. In everything we do we are inspired and guided by the hopes and wishes of the people we support.
Website: www.together-uk.org

Suffolk Head Office, 21 High Street , Ipswich, IP1 3QH
Tel: 01473 256218 Fax 01473 256107
Email: suffolkcss@together-uk.org

WAVENEY WOMEN'S HEALTH INFORMATION CENTRE
Advice & support for women with health/personal issues. 21 Milton Road East, Lowestoft, NR32 1NT. Tel: 01502 561816 Fax: 01502 582112
Email: wwwhic@wwhic.fsnet.co.uk

  

 

Last Updated 25th August 2007 - SDIG